After 6 years of recurrent infections (chronic sinusitis, allergic rhinitis and asthma, lung infections, strep and a hospitalization for Pyelonephritis - kidney infection and now chronic dermatographic urticaria - hives) we FINALLY have a plan to stop the allergies, prevent the infections, calm the immune system, cease the hives and provide my child with a healthier happier life...my hopes are high!
This week we visited a new ENT (ear, nose and throat doctor) and a new Allergist. While I'm scared of the "action plan" I'm more scared of her continued illnesses so the plan is:
1. Allergen immunotherapy (allergy shots for 3 -5 years)
2. 2nd Myringotomy / tympanostomy (ear tubes inserted)
3. Ciliary biopsy (check to see that the mucus is being moved out adequately)
4. 2nd Adenoidectomy (removal of the adenoids if regrowth)
5. Tonsillectomy (removal of tonsils)
This plan was agreed upon after our pediatrician, infectious disease doctor, ENT doctor and allergist unanimously agreed.
TIPS:
1. Ask LOTS of questions - of doctors and of parents with children who have had these treatments and surgeries.
2. Research / read several articles on the treatments and surgeries. Don't rely solely on information from others.
3. Keep your binder updated and write notes after each visit so you don't forget anything you learned.
4. Make copies of labs, doctor's notes or medical history you have for the doctors you see. Don't assume they already have the information or have talked to your other doctors.
5. Stay as optimistic as possible. Talk to your children as honestly as is age appropriate...you want them to always trust what you say.
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