My daughter has a mild immune deficiency which while labeled "mild" causes her to be ill frequently. The immune system is hard to understand but after several "abnormal" lab results I found it helpful to educate myself on what specifically the major organs of the immune system do so I could ask doctors better questions.
As parents, we have to be our child's biggest advocate. We see them every day and we know their "normal". Remember to keep the binder (discussed in my post "The Best Thing I Ever Did"). TIP: Keep a print out of the medicines your child has been prescribed and for what. If you have prescription insurance you can print the list from your providers website after logging in. You can also ask your pharmacy for a print out of the prescription history. Keep this in your binder.
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